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Everything~!
brave-escape:

why is your dog tall enough to be in the nba

hikki-ko-mori:

so i was taking a bath

a bubble bath to be specific

i used half a bar of lush’s comforter (however you fucking spell it) and this happened

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crazy right? i think my mom’s tub is made of magic powers or something

so i had a nice bath, watched some cry plays on my ipad

and i drained my tub

i came down to my room, two floors down in the basement

and i am greeted with this

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i cAN”T FUCKInG BREATHE

(Source: kikuchimoa)

My Parents are Dead and My Sister is Disabled

congalineofdurin:

eisforedna:

On May 28th, my sister, Edna, turned 31.

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Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

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Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

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That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

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ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

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May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

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Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

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Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

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YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

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Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

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For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

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But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

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She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

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So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

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Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

(Source: )

sixpenceee:

THE PORTRAITS
A classic creepy story
There was a hunter in the woods, who, after a long day hunting, was in the middle of an immense forest. It was getting dark, and having lost his bearings, he decided to head in one direction until he was clear of the increasingly oppressive foliage. After what seemed like hours, he came across a cabin in a small clearing. Realizing how dark it had grown, he decided to see if he could stay there for the night. He approached, and found the door ajar. Nobody was inside. The hunter flopped down on the single bed, deciding to explain himself to the owner in the morning.
As he looked around the inside of the cabin, he was surprised to see the walls adorned by several portraits, all painted in incredible detail. Without exception, they appeared to be staring down at him, their features twisted into looks of hatred and malice. Staring back, he grew increasingly uncomfortable. Making a concerted effort to ignore the many hateful faces, he turned to face the wall, and exhausted, he fell into a restless sleep.
The next morning, the hunter awoke—he turned, blinking in unexpected sunlight. Looking up, he discovered that the cabin had no portraits, only windows.
fueledby-fuentes:

tomfuckinmison:

myformofimagination:

Ok, so here’s personal story time.
I went to Disney World Magic Kingdom today wearing this pink and white sun dress and my hair was in soft curls. My hair is sort of long, but you can’t really tell that from the picture.
Anyway, we were walking around for a little while, and then this mother walked up to me holding her daughter’s hand. At first I kind of got nervous because I don’t just get randomly talked to on the norm. But then the mother kind of embarrassingly said “I don’t mean to bother you dear, but my daughter here has been asking me non stop since she’s seen you if you were Sleeping Beauty and if it’s your day off.”
Ok, now I do not look like any Disney Princess. So I assumed she only thought this because of my hair and dress (I would imagine if Sleeping Beauty were walking around Disney in the summertime on her day off she would wear a pink sun dress. Or blue lol).
I looked down at the daughter, who was wearing a Sleeping Beauty kids dress and she was kind of hiding behind her mom and smiling. So instead of telling her no, this is what I did:
I bent down to my knees so I could be on her level and I said, “Oh Princess, you must have just woken up for behaving so silly. Obviously you are Princess Aurora, aren’t you?” I pointed to her dress. “It really is an honor to meet you. You’re my favorite Disney Princess.” By now she was giggling and moving out from behind her mom. “But I have to warn you. I heard that an evil sorceress is out to get you, so be careful. Make sure you be safe and stay away from spinning wheels!” I looked up at the girl’s mother who had the biggest smile on her face. “Ok Princess, you better get back to running the kingdom. And remember to always keep dreaming!” The girl then gave me a hug. When they were walking away the mother turned back to me and I noticed her eyes were watery. She mouthed “thank you”.
And that, ladies and gentlemen, gave me the most satisfying feeling I have ever had.

last time i went to disney land someone mistook me for a trash collector

I just spit everywhere